our Story 

 

Optimists. Dreamers. Hopeful. Glass completely full...

Anyone who knows our family would have described us that way.

Until the glass shattered. And the water spilled. And it drowned our hopes & dreams for our children with two terrible words: CYSTIC FIBROSIS! Callie was diagnosed at just 8 days old, followed by our older kids being tested & stamped with a giant question mark, because they too, could have "CF." Now imagine the entire world being pulled out from under you... Yes, that's what it felt like.

Life Gave Lemons was the ultimate truth and there was absolutely nothing we could do about it. We hate lemons. We hate CF. Now what...?!

Our days now filled with breathing treatments, airway clearance therapy, medications, hospital visits, feeding tubes, surgeries, & sterilizing medical equipment allowed the darkness to swirl and consumed our every thought.  Life felt hopeless... after all... this disease is progressive and will only get worse, more time consuming and heart wrenching, and ultimately claim our littles lives far too soon.

So now what? We are overflowing with lemons... the only thing we can do is make some lemonade. We hate to be wasteful.

We all figured out a groove that worked, and how to squeeze in a few hours a day of treatments. We learned the disease. We cried ALOT, but somewhere along the way something else happened. EMPATHY. CONNECTION. APPRECIATION. DRIVE. DESIRE.

EMPATHY & CONNECTION: Connecting with other families who were being pelted with lemons was everything. After all, CF is just our hard... but man alive there are so many lemons out there. SO MANY! We joined the Family Advisory Council at Phoenix Children's Hospital, the Cystic Fibrosis Foundation Arizona board, Raising Special Kids Arizona, & any other organization where we could make an impact.

APPRECIATION: We can honestly say that life stops mid giggle OFTEN now... and we soak up every. single. moment. Building blocks, coloring pictures, and snuggling are things we took for granted with our first two kids (Sorry kids!) A great conversation, a sunset,  a delicious meal, visiting some place new, the smells after rain, a favorite song on the radio, pajama dance parties in the kitchen... we live for these moments.  And all we have are the moments because nothing is guaranteed.

DRIVE: Formally owning {Never Nola} a girls fashion line, we wanted to dive back into that space in a way that made a difference for many, not just those with CF. Born was 'LIFE GAVE LEMONS' a brand created to raise awareness and empower all. Also- hopefully laugh a little too, because laughter is such a beautiful medicine. Every design is inspired by a warrior & every Tshirt sale raises research funds for the cause it rallies for! Together we can move mountains people!!

DESIRE: We want more experiences and moments. If our children will get less years to live, then we better LIVE HARD & MEANINGFUL! Follow our adventures on our blog and social media as we aim to live it up, all while toting a ridiculous amount of medical equipment and medicines along the way... because we can all do hard things right?! Plus lugging all of it will surely make us super swole'

And since that darn glass was spilled... we plan to fill it with an endless pour of lemonade every day of our lives.

To learn more about Cystic Fibrosis visit www.CFF.org